Even though I made the decision to put the reality of needing another transplant on the back-burner for a few months, I have done a lot of reflecting and planning for the future. I have made some big life changes in order to set myself up for the next 2+ years of my life. I have faced the inevitable that I am probably going to end up on dialysis at some point before this transplant. The odds of finding a match and not impossible, but they are tricky. I have made the decision that when the time comes I will do hemodialysis where I go into the clinic to have it done a few times a week, rather than trying to do it at home. I like the idea of knowing that on those days that's just what I'm doing - I go in, do my thing and then leave. I don't want to turn my home into a place where I have to go back to do dialysis. I have also made the decision to do a fistula (which gives me the fucking heebie-jeebies, but the alternative tubing comes with the risk of infection and limits my activity options more. A fistula is the lesser of two extremely shitty options). So, like I said, I have done a lot of reflecting. It doesn't make it any easier, but once I get my head around something, I can get through the physical act of doing it.
I do not have any new leads on finding a match. I have had so many amazing individuals come forward and start the testing process, but as previously mentioned, there are 2% of the antibodies that I won't reject - finding the right match is going to take awhile. So, if you have been considering donating, please contact the team at LHSC - who knows, you might be my 2%!